The First International Workshop on Esophageal Atresia will take place in France in the Spring of 2010. Doctors will gather to discuss topics such as genetics, surgical procedures, reflux, complications, and quality of life issues.
I've finally gotten around to creating a Facebook page for us:
http://www.facebook.com/pages/EATEF-Family-Support-Connection/78418175958
Enjoy!
We would like to have some parent input regarding what medical information they would like to have regarding EA/TEF and ongoing care and issues. Time commitment would be 1-2 phone conferences a month for possibly a few months.
Please private message me or email me if interested. We're looking to have the first phone conference at the end of May.
Thanks,
Matt